Sickle cell disease (SCD) is a genetic blood disorder that affects millions of individuals worldwide. While awareness has increased, many remain uninformed about this condition and its impact on those who live with it. We’re aiming to shed light on SCD, its symptoms, causes, available treatments, and the importance of participating in clinical studies. What …
Rare diseases, despite their name, affect millions of people worldwide. While each condition may be uncommon individually, collectively, they impact a significant portion of the population. In this blog, we’ll explore rare diseases, their challenges, and how individuals and communities can navigate the journey of living with these conditions. What Are Rare Diseases? Rare diseases, …
Fragile X Syndrome (FXS) is a rare genetic condition that affects individuals in varying degrees, impacting cognitive and social development. Caused by a mutation in the FMR1 gene, FXS is characterized by a range of symptoms, and no known cure. Read our latest blog on Fragile X Syndrome, exploring its complexities, fostering awareness and support …
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