Unveiling the Uncommon: Understanding and Navigating Rare Diseases

Rare Disease Spotlight

Rare diseases, despite their name, affect millions of people worldwide. While each condition may be uncommon individually, collectively, they impact a significant portion of the population. In this blog, we’ll explore rare diseases, their challenges, and how individuals and communities can navigate the journey of living with these conditions. What Are Rare Diseases? Rare diseases, …

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Bringing Awareness to Fragile X Syndrome

Fragile X Syndrome

Fragile X Syndrome (FXS) is a rare genetic condition that affects individuals in varying degrees, impacting cognitive and social development. Caused by a mutation in the FMR1 gene, FXS is characterized by a range of symptoms, and no known cure. Read our latest blog on Fragile X Syndrome, exploring its complexities, fostering awareness and support …

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Why Are Placebos Used in Clinical Research?

Clinical trials are the backbone of medical research, paving the way for groundbreaking discoveries and advancements in healthcare. One crucial element of these trials is the use of placebos, inert substances with no therapeutic effect. While the idea of administering something that lacks active ingredients may seem counterintuitive, the use of placebos plays a vital …

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Reasons to Participate in a Clinical Trial in 2023

One of the most rewarding parts of participating in a clinical trial is that you are helping to advance medicine. But did you know that there are other major benefits to becoming a participant? Here are our top 8 reasons to participate in a clinical trial in 2023. 1. Compensation May Be Available Many clinical …

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Traveling with an Illness: Holiday Special

The holidays are quickly approaching, and that means that millions will begin booking flights and other travel plans. Traveling in an everyday situation can be stressful but going with an illness can be even more challenging. However, through planning and preparation, you can make any traveling experience easier moving forward. Planning and Preparation Traveling with …

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Things to know before enrolling

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Clinical trial results drive medical advancements and can make an incredible difference in the care of future patients. Through testing, scientists and medical doctors assess the benefits and risks of possible new treatment options. The information collected in studies provides the foundation for further development of medical procedures, devices, and drugs that will help our …

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